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Care for Caregivers event

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A photo of the Pioneer PBS studio with "Care for Caregivers" on the projection screen.

On  October 13, Pioneer PBS hosted a screening event and discussion promoting healthy conversations about caregiving, aging and dying. The event was hosted in partnership with the Southwest Initiative Foundation, the Minnesota River Area Agency on Aging, End in Mind, Do No Harm Media, The Remember Project, Granite Falls Living at Home Block Nurse Program and Prairie Five Community Action Council.

Watch: Care for Caregivers event

"This event was a wonderful opportunity to come and see a screening of a film that really opened a lot of eyes to what it looks like to be a caregiver and caregiving in the home," reflected Laura Thomas, director for aging well at Prairie Five Community Action Council.

The event included a screening of a documentary called "Caregiver: A Love Story" by Dr. Jessica Zitter, a palliative care physician who joined the conversation remotely. A few people gathered at Pioneer PBS's studio, but most joined online. 

Jason Swanson was in attendance in the studio, he's the executive director of the Minnesota River Area Agency on Aging. "We provide resources and education and raise awareness on topics for older adults and caregivers," Swanson reflected after the screening.

Swanson and Dr. Zitter also had a conversation during the event of what caregiving looks like in rural places: "So when you look at what a caregiver is, out here it's gonna be normally a family caregiver. And in rural areas, they don't live with their parent or with a loved one. Usually there's a travel distance and that travel distance, according to recent study out for rural America, shows that they'll travel anywhere from 30 to 60 minutes, one way."

"One other thing to add [is] The National Alliance on Caregiving 2020 report just talked about how much family caregivers on average spend of their own money on caregiving in the course of a year," Dr. Zitter responded. "And that's $6,000 of their own money. And ... a third of family caregivers are making less than $50,000 a year. So they're paying $6,000 on average of their own money, and that is twice as much if you live away from the care recipient."

Swanson continued, "Also when you have a caregiver in the family, a family caregiver, the person you turn to is the one that's already in the profession, a nurse, a CNA. So after their job ... they'll go home and take care of mom, dad or other loved one as well."

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Now let's meet a caregiver who fills this profile. My mom, Carol Anderson, is also a part of my grandmother's caregiving network, which includes my mom's siblings and their kids, along with hospice healthcare workers.

"I retired two and a half years ago. I worked at Allina Abbott Northwestern Hospital in the cardiovascular ICU," she said. "I'm a care... What would I call it? Support caregiver. So, my mom is 89 years old and I live in Minneapolis and she lives in Alexandria, which is about 120 miles from here."

She'll drive about once a week to see grandma. Because she'd worked in cardiovascular nursing for over 40 years, my mom tries to go to most of grandma's doctor appointments. While she said she doesn't think that her caregiving contributions are more significant than any others, she does think that her unique professional background gives her leverage here.

"And so yes, answer to your question. I think it would be harder if I didn't have the medical background that I do," she said."

I brought my mother into this conversation to show how close this issue is to many people. It's lucky really that my retired mom has both the medical background and now the time to be able to direct her expertise in this way.

"I think the hardest part ... is understanding the medical system and just the different physicians that get involved," Anderson said. "You know, as people get older, they get cardiologists, they get different specialists and then it becomes really hard to coordinate all of that. And that's what I was able to do because I understood that part of what happens."

A reoccurring theme by many attendees at the Care for Caregiver event was how to have healthy conversations about end of life care. One organization facilitating these conversations is The Remember Project. Danette McCarthy, the founder of The Remember Project was also in attendance at the event.

"In my field of working with The Remember Project, we use theater as a tool to invite a conversation and it's exciting to me because most of us would rather talk about those people on the stage or those people in the film than we would like to talk about our own stories," McCarthy said. "So it's really exciting to see that — and maybe this has been increased or exacerbated because of the pandemic — we humans are social, we want to talk with each other, even about scary things. And so it's very exciting to see that films, videos, theatrical productions can be so powerful in building that bridge and opening a heart toward a conversation. I think our communities are ready."

Topics around death, dying and aging are heavy. They're messy and hard to talk about. But what if we, as a society, started thinking about aging as a privilege? Not all of us get to age and age well. Maybe this will help us start thinking about aging, death and dying as things to plan and celebrate, rather than a conversation to have later.

Visit pioneer.org/caregiver/resources for more information.